Help for people with ME/CFS in and around Stockport

Young Persons' Group (YPG)
Meetings/Socials:


July: Wednesday 12th

Mr Ali’s Tandori & Balti. 13-15 Buxton Road, Stockport, Cheshire, SK2 6LS. 19:30. This restaurant is highly recommended. If you don’t enjoy spicy food, they also do a decent chicken ‘n’ chips. Mr Ali’s is on the A6, along the 192 bus route, almost opposite the Blossoms pub, and a few doors away from, and on the same side of the A6 as the crematorium. If you know the junction of Bramhall Lane and Higher Hillgate, you’ll find it. No right turn, onto the A6 from Bramhall Lane. You should be able to park near the Wheatsheath pub, Bullock St or Carrington Field St.


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July: Wednesday 26th

Picnic at Alexander Park, Edgeley. Dale St/Cheadle Old Road Car Park. 12:00. We can look out for each-other in the car park or somebody can select a table to sit at. Bring healthy food to share. I’m happy to pick somebody up and go together. I recommend if you’re driving, head to the car park off Dale St which is the road in the middle of Sykes’s reservoir. Turn onto Cheadle Old Road (Not a through road to anywhere unless on foot) and park in the free public car park. If it is too cold or raining, I live a short drive away so come to my house instead. There is no need to cancel because of the weather.


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August: Thursday 31st

Ariana Persian & Afghan Restaurant. 113 Wilmslow Road, Rusholme Manchester M14 5AN. 0161 637 9897. 19:30.There are nearby public car parks on either Thurloe St or over the road on Walmer St. Join us for a meal at this highly recommended Persian/Afghan restaurant in Rusholme. We can always car share if you are concerned about getting there. There will book a table booked which is likely to be upstairs because they keep the downstairs tables for those who want to eat quickly. While there won’t be a discount, I am told they can provide a couple of starters such as a naan bread or some drinks.


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September: Thursday 28th

Board Games Session. At Fiona's house Stockport. 13:00. My road is between Garners Lane and Adswood Road. If using public transport Davenport Station is the nearest. Or the Bridgehall and Cheadle Hulme busses stop on Adswood Rd. The Cheadle circular bus stops on Garners Lane. If you don’t know the area just ask and I’ll help. A fun experience to play a board game or two you might not have played before. If you have a game to bring, do feel free to bring it or simply get a taste of the games on offer.


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October: Thursday 26th

George and Dragon SPEED-QUIZ! 14 London Rd, Hazel Grove, Stockport SK7 4AH. 0161 456 8690. 20:00.This pub is opposite Sainsbury’s and they have their own car park at the back. This for the pub quiz not just a general pub visit. They have a phone app which works as a buzzer for teams to answer questions. A cost effective night out with a few laughs along the way. Do invite somebody who is good at pub quizzes if you like.



There will be the occasional cinema visit as and when there is a big film. We meet at the cinema at Parrswood, on a Wednesday for approx 13:00, depending of course, on the film times.
If you have not joined us at the cinema before, do get in touch with either Andrew or myself as it will be nice to see you there.


Monthly Meetings


Every 2nd Friday, except August & December at the Toby Carvery.

Entry £1.

Help yourself to Tea, Coffee and biscuits, it's all included in the price!























Doors open at 10:30, speaker begins at 11:00 at the Toby Carvery, 271 Wellington Road South (A6), Heaton Chapel, SK4 5BP. For a map of the location click here


Meetings finish at 12:00, often some stay a little while to chat after as well.




Stockport ME Group Information Line

0845 519 4116

Or email smeg2244@yahoo.co.uk


This is a 24 hour voicemail service. A volunteer will respond to messages left within the next 2 working days. Please be aware that this is messaging service only, and that while volunteers regularly check for voicemail messages, no volunteer is able to answer a telephone call there and then, so please do leave a message.


Anyone on a BT Anytime landline can call this number for free. All other calls are charged at 2p/minute daytime and 0.5p/minute evenings*. Alternatively please email us at smeg2244@yahoo.co.uk


This is an information line number only. Volunteers responsible for dealing with queries will not be permitted to give advice. For Stockport ME Group members, if you have a specific query, numbers on page 2 of HERMES still apply.


*correct at the time of going to press  

Views in and around Stockport

Thanks to Stockport MBC for the images.

The Solidarity Drop-In

(benefits support).


The Solidarity Drop-in which was formerly located in the now closed Sir Joseph Whitworth Centre is now taking place in Disability Stockport's Centre for Independent Living, at 23 High Street, Stockport, SK1 1EG. It is on Mondays from 10 am to 4 pm.


They offer support with completion of applications for Personal Independence Payment and Employment and Support Allowance and information on social security sanctions. They can also help with referrals to the appropriate service in cases where advice, or representation in appeals is required.


High Street is on the route of the free Stockport Metroshuttle bus, service 300.


Anyone who is interested in volunteering to work with Solidarity Drop-in, is very welcome to drop in and chat to their team. They have two roles - reception, and support with forms and referrals. Training by an experienced professional in the field, is available for the latter role.


Two Petitions relating to ME/CFS


We have been made aware of the following two petitions. Please do take time to have a look at them and sign if you feel you wish to support them.


Increase funding for ME/CFS research

At the moment ME/CFS is diagnosed by ruling out every other illness.  Doesn't sound right does it!  If you think its full name Myalgic Encephalomyelitis hard to pronounce, living with it is even harder.

·  Deadline 23 July 2017.  All petitions run for 6 months.  www.petition.parliament.uk/petitions/177849

 

Suspend all trials of GET in children and adults with ME/CFS ***

In surveys hundreds of patients have reported harm — some becoming housebound or bedbound, indefinitely — from graded exercise therapy (GET). The Government must demand that research and funding bodies suspend all trials of graded exercise therapy for ME/CFS until the evidence has been reassessed.


Clinical trials such as MAGENTA still use graded exercise therapy, even in children, but are being justified on the basis of the flawed PACE trial. Scientists have severely criticised PACE, the major adult trial that claimed the therapy to be safe and effective. Thousands have demanded retraction of PACE’s “misleading” analyses and 24 ME/CFS charities from 14 countries demanded that its data be released for reanalysis. PACE is no basis for a trial in children or adults. Read more at stopGET.org.  Deadline 12 March 2017. All petitions run for 6 months.  www.petition.parliament.uk/petitions/166601


*** Note the deadline has passed but left here for reference.




If the petition gets 10,000 signatures the Government will respond

If the petition gets 100,000 signatures it will be considered for debate in Parliament


Stockport ME group is now on Facebook!


If you are on Facebook come and join the conversation.

Find us on:

https://www.facebook.com/groups/stockportmegroup/

or just search for Stockport ME Group.

You will be able to ask questions and chat with other members of the group.




Hope to see you there!

The NICE guideline for CFS/ME is not fit for purpose and needs a complete revision


The NICE Guidelines on ME/CFS are currently in a 2 week consultation window and The ME Association has put together a petition on www.change.org which we encourage you to look at, sign and share it with others.



https://www.change.org/p/petition-the-nice-guideline-for-cfs-me-is-unfit-for-purpose-and-needs-a-complete-revision