Help for people with ME/CFS in and around Stockport
Young Persons' Group (YPG)
July: Wednesday 12th
Mr Ali’s Tandori & Balti. 13-
July: Wednesday 26th
Picnic at Alexander Park, Edgeley. Dale St/Cheadle Old Road Car Park. 12:00. We can
look out for each-
August: Thursday 31st
Ariana Persian & Afghan Restaurant. 113 Wilmslow Road, Rusholme Manchester M14 5AN. 0161 637 9897. 19:30.There are nearby public car parks on either Thurloe St or over the road on Walmer St. Join us for a meal at this highly recommended Persian/Afghan restaurant in Rusholme. We can always car share if you are concerned about getting there. There will book a table booked which is likely to be upstairs because they keep the downstairs tables for those who want to eat quickly. While there won’t be a discount, I am told they can provide a couple of starters such as a naan bread or some drinks.
September: Thursday 28th
Board Games Session. At Fiona's house Stockport. 13:00. My road is between Garners Lane and Adswood Road. If using public transport Davenport Station is the nearest. Or the Bridgehall and Cheadle Hulme busses stop on Adswood Rd. The Cheadle circular bus stops on Garners Lane. If you don’t know the area just ask and I’ll help. A fun experience to play a board game or two you might not have played before. If you have a game to bring, do feel free to bring it or simply get a taste of the games on offer.
October: Thursday 26th
George and Dragon SPEED-
There will be the occasional cinema visit as and when there is a big film. We meet
at the cinema at Parrswood, on a Wednesday for approx 13:00, depending of course,
on the film times.
If you have not joined us at the cinema before, do get in touch with either Andrew or myself as it will be nice to see you there.
Every 2nd Friday, except August & December at the Toby Carvery.
Help yourself to Tea, Coffee and biscuits, it's all included in the price!
Doors open at 10:30, speaker begins at 11:00 at the Toby Carvery, 271 Wellington Road South (A6), Heaton Chapel, SK4 5BP. For a map of the location click
Meetings finish at 12:00, often some stay a little while to chat after as well.
Stockport ME Group Information Line
0845 519 4116
This is a 24 hour voicemail service. A volunteer will respond to messages left within the next 2 working days. Please be aware that this is messaging service only, and that while volunteers regularly check for voicemail messages, no volunteer is able to answer a telephone call there and then, so please do leave a message.
Anyone on a BT Anytime landline can call this number for free. All other calls are charged at 2p/minute daytime and 0.5p/minute evenings*. Alternatively please email us at email@example.com
This is an information line number only. Volunteers responsible for dealing with queries will not be permitted to give advice. For Stockport ME Group members, if you have a specific query, numbers on page 2 of HERMES still apply.
*correct at the time of going to press
Views in and around Stockport
Thanks to Stockport MBC for the images.
The Solidarity Drop-
The Solidarity Drop-
They offer support with completion of applications for Personal Independence Payment and Employment and Support Allowance and information on social security sanctions. They can also help with referrals to the appropriate service in cases where advice, or representation in appeals is required.
High Street is on the route of the free Stockport Metroshuttle bus, service 300.
Anyone who is interested in volunteering to work with Solidarity Drop-
Two Petitions relating to ME/CFS
We have been made aware of the following two petitions. Please do take time to have a look at them and sign if you feel you wish to support them.
Increase funding for ME/CFS research
At the moment ME/CFS is diagnosed by ruling out every other illness. Doesn't sound right does it! If you think its full name Myalgic Encephalomyelitis hard to pronounce, living with it is even harder.
· Deadline 23 July 2017. All petitions run for 6 months.
Suspend all trials of GET in children and adults with ME/CFS ***
In surveys hundreds of patients have reported harm — some becoming housebound or bedbound, indefinitely — from graded exercise therapy (GET). The Government must demand that research and funding bodies suspend all trials of graded exercise therapy for ME/CFS until the evidence has been reassessed.
Clinical trials such as MAGENTA still use graded exercise therapy, even in children, but are being justified on the basis of the flawed PACE trial. Scientists have severely criticised PACE, the major adult trial that claimed the therapy to be safe and effective. Thousands have demanded retraction of PACE’s “misleading” analyses and 24 ME/CFS charities from 14 countries demanded that its data be released for reanalysis. PACE is no basis for a trial in children or adults. Read more at stopGET.org. Deadline 12 March 2017. All petitions run for 6 months.
*** Note the deadline has passed but left here for reference.
If the petition gets 10,000 signatures the Government will respond
If the petition gets 100,000 signatures it will be considered for debate in Parliament
Stockport ME group is now on Facebook!
If you are on Facebook come and join the conversation.
Find us on:
or just search for Stockport ME Group.
You will be able to ask questions and chat with other members of the group.
Hope to see you there!
The NICE guideline for CFS/ME is not fit for purpose and needs a complete revision
The NICE Guidelines on ME/CFS are currently in a 2 week consultation window and The ME Association has put together a petition on www.change.org which we encourage you to look at, sign and share it with others.